Normal
November, the month we all start to feel the holidays creep in, the parties start, the snow starts trickling down, Christmas is everywhere, and the thought that another year has passed finally hits...
View ArticlePerfect days…
It seemed as though I was having a rough time for a little while, getting all of my recent results, putting a date to my radiation, having issues with my adrenal insufficiency, and meanwhile I was just...
View ArticleRemedy for the Rare – MIBG
Well this is awkward… I think it’s been 12.. days, I don’t even know quite honestly, I’m completely disconnected from the world right now. I kind of left all of you hanging, I apologize for my absence....
View ArticleThere’s always a reason to smile
With so many awful things to worry about, feel, and experience… Cancer gives you two options: succumb to it’s misery and pain, and let yourself be one with it physically and mentally, or… Allow...
View ArticleIt can only get better…
WELL I CERTAINLY HOPE SO. I keep being told it will be worse before there’s a chance of it getting better… I’ve had quite a bit of proof of the first portion of this statement, now I will have to...
View ArticleTime Limit…
Those of us with terminal cancer have the unremarkable pleasure of figuring out how to live while we are dying; yet lately, I’ve had to put all of my focus into figuring out how to not feel as though I...
View ArticleI am rare – Rare Disease Day
Although I would like to think that I use every day as an opportunity to make this disease a little more exposed, february 29th 2016 is rare disease day. A day to remind the world that although rare…...
View ArticleThis is Cancer.
How do you tell the ones you love… something you can’t begin to explain yourself” I moved into my dream home 22 days ago Twenty two days of contemplation and careful thought of how I was going to share...
View ArticleA zebra can be a unicorn
Pheo VS Fabulous 🚨 Coming to you live from the comforts of her 15×25 hospital suite 🏥 It’s incredible when the mental fog begins to clear just a touch and you’re able to begin to make the smallest of...
View ArticleZebra or Unicorn 🦄
If you have been in the “rare disease” world with us, you may wonder what the reference is to the zebra. When you hear hoofbeats, we are trained to think horses, not zebras … 🦓 This means that in a...
View ArticleClik here to view.
CTV news tonight @ 6
If ever there were a time to watch the news, tonight is the night. I will be on CTV news tonight at 6 with Emily Campbell discussing one of my most difficult events that happened to us so far. It’s...
View Article“Couple speaking out after psychologist coaches husband to try and kill...
https://montreal.ctvnews.ca/mobile/couple-alleges-psychologist-tried-to-talk-husband-into-killing-terminally-ill-wife-1.4667916
View ArticleClik here to view.
I have news …
Five years ago I was told I had 1-5 years to live. I sat in a white office with the same diabetes posters and bland medical facts I had looked at several times, and contemplated how angry I was. Angry...
View ArticleClik here to view.
10 things I’ve learned about fading relationships
Support comes in all forms when you receive a diagnosis, but as you become sicker and the “old you” starts fading away, so do your relationships. So many people want to be there for you when you first...
View ArticleClik here to view.
The Mighty Article
Yesterday I shared a very personal blog that I felt could relate to a lot of people going through similar times. Not even necessarily sick people, just people who have had fading relationships for...
View ArticleClik here to view.
Your Questions…
A few weeks ago I asked you guys to ask me anything, I’m so happy to share with you the answers to your questions! Watch below Like and share! Follow me on Facebook & Instagram: @pheovsfabulous
View ArticleClik here to view.
Taking back my fab!
I’m no stranger to treatments and procedures, that’s the understatement of the century! However, getting something done because I WANT IT done, that’s a new concept as of late. When you’re sick, your...
View ArticleJust because I have a terminal illness…
Doesn’t mean I’m terminally ill, confused? I was too. I still might be, but I think it’s time someone explained what it is to have a terminal rare disease. With rare disease day approaching, I’d like...
View ArticleClik here to view.
35 things I wish you knew about having a rare illness…
35 things we wish you knew about having a rare cancer, chronic disease, or rare illness. Here’s the thing, before I start… I want you to know that I’ve asked hundreds of patients fighting this disease...
View ArticleClik here to view.
I am Rare: 2021
If you had asked me six years ago what I was going to write in 2021 on rare disease day, I’d have told you I wouldn’t be here to share. I’d have told you what they told me, I maybe have a year left....
View Article